Diabetes is so easy to manage!

I think that anyone who has actually dealt with diabetes can hear the sarcasm dripping from that title. Or they were shocked and wondered what kind of snake oil I was going to sell. No snake oil here!

We are back to the insurance company only wanting to cover 1 test strip per day. “102 every 90 days”. Part of having any semblance of control is knowing where you are at. How can anyone do that on ONE test strip per day? I shouldn’t have done this, but I gave up. I said I would just pay out of pocket for them. I know that this gives the insurance  company what they want, which is more money in their pocket, but come on!

To break it down again, my husband has double insurance coverage. Generally the secondary picks up any co-pays or costs that the primary did not pay for. So, 3 test strips a day, leaves a $50 co-pay for us, which the secondary was picking up. They refused to pick up the $50 co-pay for 4-6 strips per day. It didn’t cost them any more, but they still denied it. Now they are back to saying that they will only cover the 102 every 90  days. We tried to explain that he is type 1, because the 102/90 is what they pay for type 2, while they do 102/30 for type 1, but somehow it’s not getting through. I just need the darn test strips, ok?

We have started the process to get an insulin pump for my husband. This should be helpful in managing his diabetes, if the stress of the process doesn’t kill him first. We met with the doctor, who sent  the information to the pump supply, who contacted insurance. Insurance will not consider paying for the device until he does a blood test that shows the level of c-peptides in his body. A Type 1 diabetic has low or no c-peptides, while a type 2 could have normal peptides. From my research, it seems that they would require a person with normal or high peptides to control their diabetes through diet and exercise. Since my husband is type 1, this is  not going to happen. 45 years of medical records seem to make little difference.

There are two requirements for the test:

  • fasting after midnight
  • blood sugar below 150

The first night, I woke up shortly before midnight and checked his blood sugar. It was 82, so I had him drink some chocolate milk. I woke up again at 3, and it was 62, so he had more chocolate milk. He could not do the test because he was no longer “fasting after midnight”. Last night, I checked him at midnight and he was a little on the high side, so I woke him up and had him take a shot. He was still too high this morning for the test, so we will have another go at it tonight.

It’s really frustrating that I know other diabetics who have taken this test, but they were not required to have a blood sugar under 150. Generally, he is under 180 in the morning, but it is rare that he is under 150. Even if he was under 150, there is no guarantee that it won’t go up between  here and the doctor’s office and waiting to be called in for the lab. Or, it could go the opposite way, he could be under 150, but drop rapidly because he has been fasting since midnight.

We will do this. WE WILL. I am flabbergasted at the amount of frustration that a insurance company is willing to cause a diabetic. He wants a pump to have better control over his diabetes. He wants a pump to have more normal blood sugars. Making my husband meet a list of requirements, although short, makes him feel like a failure when he doesn’t meet them.

We would love your prayers for better results tonight. If he could get this part out of the way, I know he will feel victorious.

Diabetes Yo Yo

It was a bit of a rough night. The morning started way too early for my liking, although our two year old seemed okay with it. (UGH!)

When my husband tested his blood sugar last night, it was in the 240’s. We kind of expected it to be high, because we had jasmine rice at dinner. We rarely have rice, but last night I was hankering for this for dinner. I will be having it for lunch today too. It was hard to stop at just one bowl. 🙂 At about 2:30AM, I heard my husband’s c-pap machine turn off. At 5:45, I don’t notice it, but my mind must have known it was the wrong time. I sat up, put my glasses on and asked what was going on. I asked if he had a low blood sugar and he said he thought so. He sounded a little slow, so I got up to check it for him. 57!

In the course of four and a half hours it went from 240 to 57.

This does not reassure me about his upcoming business trip!

After bringing his blood sugar back up to the normal range, covering the sheets from his sweat fest, and laying back down, I couldn’t sleep. First he was snoring. Then that two year old wasn’t interested in going back to sleep. I was going over “Where did we (I) go wrong?” And I couldn’t stop thinking about how to prepare him for his trip, to ease my mind and to help him in the case of a low blood sugar.

I told him that he had to wake up to test each night he is gone, no matter what. I am going to make sure he has some Squeezable apple sauce, pbj’s, and small sodas available. And I am going to pray A LOT.

(What are some other ready to go snacks he could have available?)

Parents of kids with diabetes, how on earth do you survive time away from your kids? I feel like a control freak, or that I am being really annoying about this. We’ve survived time apart before, but still I worry.

By the way, I went to the library yesterday and brought this home:

20150618_154245

Just a little light reading for the kids’ summer break. 🙂

Back to that low blood sugar, what’s the deal with rice anyway?

A Diabetes Break

The thing with diabetes is it never gives you a break. It is constant and you always have to TRY to be one step ahead of it . Some days you will succeed and others you will fail miserably. Every day you have to get right back on the horse, or the bike, or your motorcycle and try, try again, because giving up is not an option. My husband will never ever get a break from diabetes. It will go wherever he goes. It’s a constant companion. No matter where he goes or what he does, he will have to consider diabetes. It’s almost like a girlfriend that turns into  a stalker when you try to make it go away.

My husband will be going on a business trip soon. He will take his diabetes with him. He will take a box full of goodies, hopefully enough for his time away. He will need some carb-y snacks and some low carb snacks. I’ll probably stick some peanut butter, crackers, glucose tablets, etc in there. I will also probably worry the entire time he is gone. Especially at night. He sleeps soundly, but I get up at least once per night. No matter what wakes me up, I make it a habit to check on him. Depending on what his activity level and/ or blood sugar was before or at bedtime, I might check his blood sugar.

These are the things that worry me when he is away for any length of time. It hasn’t happened very often. I can probably count on one hand how many times it has. When he went to Reno 16 years ago, I don’t remember worrying. He was diabetic then, but it hadn’t infiltrated my life as much as it does now. We are constantly checking in with each other on his blood sugars, his insulin doses and how he is feeling. He CAN count carbs, but typically he relies on me to tell him what they are, because I prepare most of his meals. (he’s generally on his own for breakfast and takes leftovers for lunch)

So he won’t get a break…. ever, but I will. He will be gone and I won’t be able to count his carbs or prepare his meals. I won’t have to meal plan with him in mind, while he is gone. The kids and I can graze if we want, we can have ice cream, sandwiches, cereal. I won’t have to make sure that the meal I am providing is well rounded.

It sounds almost delightful, but I am sure that when the time comes, I won’t think so. I will probably worry too much to really enjoy it. He HAS promised to keep in touch morning and night with his blood sugar readings. It sounds awful, like he has to check in with a mom, but he knows that it gives me peace of mind.

And as a side note, have you seen this? http://www.wral.com/news/national_world/national/video/14722595/

Do you think a cure for diabetes is possible? I’ve seen many hopeful “cures” that haven’t panned out, so i am a bit hesitant to get excited about anything that seems possible.

I’ll check back in at a later date and let you know how the time apart went. eeeek.